The journey began with nothing. Not that we knew it. Her little life hanging in the balance, the ventilator humming in the background. "A...

It’s 'Transplant Day Anniversary' in our home today. The memories still cause my heart to thud loudly in my ears. Walking my 5 year old...

Sometimes, we don’t know how to help. We want to. Our hearts break. Hands and feet itching to provide relief. Especially when they are...

(If you want to catch up on the previous posts in the Memoir of SCIDS, click here) We finally moved out of our ICU home after three...

(*To catch up on the previous posts in, 'A Memoir of SCIDS' series, click here) We can hold her now. Our plump, sweet little girl,...

(To catch up on the previous posts in my 'Memoir of SCIDS' series, click here.) Remembering all the answers to prayer this week makes me...

Did you read the announcement last week that Manitoba is going to be introducing newborn screening for SCIDs next year?! That's some...

To catch up on the previous posts of our SCIDS journey click here. Life in the PICU has a routine, an organized flow of activity; nursing...

To catch up on the previous posts about our SCIDS journey click here. It’s that moment after something big & amazing has happened...but...

To catch up on the previous posts about our SCIDS journey click here. “There is nothing else we can do” The words reverberating in my...

We made it through the night...barely. Her oxygen levels are not holding, the pressure settings on the ventilator are at the maximum....

Throughout the night, her condition continues to escalate. The oxygen in her blood isn't enough, it is drifting lower and lower,...

When I say we settled in, it means we dropped our stuff in a corner and crashed into the closest available chair. At 3am now, we are...

"Don't look at the monitor Amber! You should not be looking at it!" my friend tells me, as I sit with my baby in the trauma room of the...